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Knowledge, perception and practices towards sickle cell disease: a community survey among adults in Lubaga division, Kampala Uganda

Abstract

Worldwide, the burden of Sickle Cell disease (SCD) has not been amply addressed. In Africa, Uganda has the 5th highest burden, a situation aggravated by limited and inaccessible formal social support structures to aid patients and families cope better with the psychosocial burden of SCD. In addition, this has been coupled with stigmatization and discrimination of people living with sickle cell disease causing isolation from family and society.

Publication
*BMC Public Health

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My Story

A PhD candidate in population genetics at the University of Kansas, with a track record of launching non-profit and for-profit companies in sub-Saharan Africa. An entrepreneur, fundraiser and advocate supporting patients with Sickle Cell Disease worldwide. Proven international leadership and project management experience that combines business strategy acumen with technical understanding, knowledge of public policy and effective communication.
Hands-on scientist with a strong background in computational genetics working on the genomic basis of mating system evolution. Featured among 100 Leaders of Impact by the Global Thinkers Forum (2021) and recognized as the International Sickle Cell Advocate of the Year (2020). Awarded the Clarke International University’s most outstanding community outreach award (2018) and selected among the top 1000 young leaders in Africa by the US Dept of State under the Mandela Fellowship (2017)