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IONO FM: World Sickle cell Day

My journey

Tuesday 19 June was World Sickle Cell Day. Gilmore talks to Sharifu Kiragga Tusuubirau from Uganda who is living with the disease and he finds out how he manages his day to day life. Sharifu also sheds some light on how being born with Sickle Cell Disease inspired him to work in the medical space and also create awareness around the disease. Featured on the show is multi award winning Zimbabwean Dance Crew - Antivirus, who are currently running a dance for fitness initiative with the aim to promote a healthy lifestyle, while having fun. Gilmore plays out with a brand new song KHETHA, from Mimi​e​ Ft Reverb 7.

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My Story

A PhD candidate in population genetics at the University of Kansas, with a track record of launching non-profit and for-profit companies in sub-Saharan Africa. An entrepreneur, fundraiser and advocate supporting patients with Sickle Cell Disease worldwide. Proven international leadership and project management experience that combines business strategy acumen with technical understanding, knowledge of public policy and effective communication.
Hands-on scientist with a strong background in computational genetics working on the genomic basis of mating system evolution. Featured among 100 Leaders of Impact by the Global Thinkers Forum (2021) and recognized as the International Sickle Cell Advocate of the Year (2020). Awarded the Clarke International University’s most outstanding community outreach award (2018) and selected among the top 1000 young leaders in Africa by the US Dept of State under the Mandela Fellowship (2017)